Are you holding tension in your face? Let it gently relax.
Let a small smile come to your lips.
–a mindfulness reminder from chill-app.com
this is a place holder as I am trying out a new format.
They are all around us, but widows can sometimes feel invisible and forgotten. They need help. This I know from experience. And this is what they (and you) should do.
Loving this velvet vibe from my friend Mary-Paula. I pulled out my black velvet slim cigarette pants and paired with a plain white t-shirt and jean jacket. And in the closet -shopping mode pulled out my Velvet Leopard waist-coat jacket paired with wide leg high-waist black jeans and new ankle boots to pull the whole thing together. Especially original is using clip earrings as sparkly accents on her collar. Wow! thanks M-P
TGIF! It’s been a super busy week “day job” wise, as I’m juggling multiple freelance projects. All fun but demanding of my time. I had hoped to post a day or two ago, especially after the great shoot we had last weekend. And especially because I want to share some of my favorite fall fashion finds — pieces I know I (you?) will be wearing again and again. And will probably love just as much next year, too.
So unless you’ve been living on an atoll in the Indian Ocean you know VELVET is everything this fall. I’ve loved velvet since I was a kid — from my Madame Alexander doll dresses to ballet recitals to holiday party dresses. It’s lush, plush, and simply perfect for colder weather. I had my eye on these Blue Velvet Booties the moment I saw them, backorder drama notwithstanding. They are simply sublime. The…
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Shop your closet. It’s a smart thing. And then add some fab pieces like my friend MP does. Such a chic chick. And love her dog Bowie such a rock star…
We have a log cabin nestled on 101 mountain acres in the Adirondacks. Dream come true? You bet ya. My husband Chris has been hiking up there since he was 16. I think it was on our second date that he suggested we go up and climb a 46er. Flash forward a few months later to a rainy, cold, almost gale like October, and we were on the way up Gothics — aka pretty damn scary. Chalk it up to being fit, foolish, feisty and 20-something but climb my first 46er I did. And after a hot shower and some craft beer, I fell in love with this most magical spot in the world. We’ve never looked back. Though we’ve kept our Keene Valley Real Estate agents busy for years…and years…as we searched for the perfect property.
Buying our cabin meant a massive life change, in that we sold…
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My friend Mary Paula has such style. Chic elegance and perfect for all grown up fashion and chic-ness. (is that a word?)
Velvet is really having a moment as far as Fall Fashion is concerned. I kicked off my own obsession with this one-button blazer in citron. I actually bought my usual size 2 but a Tall — so I could fold the cuffs back. Due to the weather, this shoot had to be indoors, and it just happened to match the seating nook in our building’s resident lounge perfectly. How mod is that! I loved the idea of pairing it with blue hues — a pop arty, navy and cream polka dot blouse and cropped raw edge denim flares. The finishing touches? A two-tone blue leather clutch and my flashy, gotta love ’em Gucci Marmonts. (Amortizing wears per dollar on a weekly basis!)
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Above, at our Adirondack cabin.Here, in our JC kitchen.If you read my Sunshine Smoothie post, you know I undertook the Dr. Oz 28 Day Shrink-Your-Stomach Challenge at the beginning of the summer. It was no picnic, but the results were more than palatable. Pounds lost, waistline rediscovered, bloat banished. As I did with my Smoothie […]
The events that led up to our wedding were anything but business-as-usual. Most brides hire a wedding planner and drag their entire entourage over to Kleinfelds’ of Brooklyn for the big pouf-y dresses that cost as much as a Mercedes-Benz. Not me. Not us.
Mark and I decided to get married in a bit of a rush. The entire affair revolved around two events. One was that his parents were heading back to Florida for the winter.
What that meant for me was this: get married before the snowbirds fly away or we may have to part. When I put this to Mark we were in New Corners restaurant in Dyker Heights Brooklyn. A traditional family restaurant with pink tablecloths, wood paneling, little candles in cups on the tables and delicious home-cooked food.
As I sat there eating my mozzarella and carozza the tears started to roll down my face and soon I was sobbing uncontrollably. I could not hold myself back anymore.
“What’s wrong?” Mark asked, “don’t you like your food? We can send it back.”
He knew that couldn’t be it the food because when I bit into my mozzarella and carrozza, I said, “yum,” like I usually do when something is delicious.
No, he knew it wasn’t the food, but he wanted to avert a possible disaster by trying to make light of the situation.
This tactic was not going to work. Not this time
“No, it’s not the food,” I blubbered. I was shaking because I had to throw down the” time to get married” gauntlet. A risky business, yes, however, I had been advised to do so or end up in a “Waiting for Godot” situation.
The waiter came over with a look of concern. “Is everything all right miss?” he asked.
“It’s fine, everything is just fine.” I said as I waved my hand at him dismissively, and gave him a weak smile, my nose red, my face puffy.
I wanted him to leave us alone.
Mark and I had been engaged long enough.
My thoughts went something like this:
Neither of us was getting any younger, we loved each other, we had been living together since we met 2 years before on Fire Island, we’d been on vacations together, put up with his ex-girlfriend living upstairs and taping the Sunday New York Times Real Estate section to our front door every week, really, what is there to think about?
Get married or get gone. It was now or never for me. Though I really wanted only to get married, not break-up, which is why I was sobbing so hard. I was scared sh*t.
Mark needed a push. His personality is such that if one waits till he makes a move, it might be a long wait. He deliberates. He got me the ring because his mother nagged him until he took action. Yes, he wanted to be with me forever he just didn’t want to have to do anything about it.
And so after a lot of crying and shaking in fear, I say to Mark, “it’s time for us to get married we are going to do it before your parents go back to Florida or we end right here. “
I burst into tears as I say this.
Mark looks stunned and then he says to me, “You want to marry me? Are you sure you want to do that?”
“Yes, of course? Why wouldn’t I want to marry you?” I asked.
I knew Mark was the man for me when he first curled up next to me in Fire Island two summers earlier without being invited. This was confirmed for sure when I walked into his yellow and lilac bathroom in his Park Slope apartment and saw enough neatly stacked toilet paper to take us through the winter. I fell in love with him right then and there.
And there were a few other things, like how easy he is on the eyes, how generous he is. Yes, Mark is a bit of a street tough yet underneath lurks a real softie. Besides, Mark wasn’t an ordinary tough guy he also ran a public school in East New York right near where he grew up in Brownsville, Brooklyn. He helped people. He changed lives.
He says to me, “I am not very good at relationships, “ and I respond to him by saying, “Know anybody who is?”
Mark got all uncomfortable and quiet so I did too. I just sat there not crying anymore, silently eating my main course, drinking my wine, sipping the water. Every once in a while we would look at each other and then back to the food. We could talk about the food.
“How is your shrimp scampi?” Mark asks me.
“Delicious, “ I say back, disinterested in this line of conversation but not going to say another word on the subject of getting married until he makes a move.
Enjoy the meal I’m thinking, why ruin a delicious dinner?
“He heard you, now leave it alone,“ I say to myself, you opened this can of worms, now stay quiet, let him figure this out.
The question is what will he do?
The waiter comes back to clear away the main course. He can see I am okay now. We nod. He hands us the dessert menu and I order.
“I’ll have a decaf espresso with a Sambuca and a cannoli.”
Mark takes a decaf espresso with a Sambuca even though he is not much of a drinker.
He seems a bit agitated.
Sure he was.
The ball was in his court.
Mark paid the check and we got into his car without a word. As we drive across Brooklyn he has a look of consternation. When we arrive in Brooklyn Heights Mark circles around looking for a parking space. He finds one on Joralemon Street a few blocks from the Brooklyn promenade.
As we get out of the car Mark is walking faster and faster and pulling me along until we are just above Barge Music and River Café with it’s twinkling lights in the garden.
From where we are standing you can see the NY City Skyline with the Twin Towers of the World Trade Center just in front of us and then uptown toward the Empire State and Chrysler Buildings. It’s a spot we go to often to skate or cycle.
Mark and I stand there for a moment just taking in the view, breathing in the night air and then he kisses me, comes around toward my back and wraps his arms around me so we are both facing the city skyline.
“So you want us to get married do you? Really? ”
He whispers in my ear.
“Yes I do and we have to do it before your parents go back to Florida.” I say back to him just as quietly.
“ You realize that is ten days from today.” He comes around and looks me in the eye as if to say, “You sure you know what you are doing?”
“ Yep, I do know time is short, so let’s do something very simple. Family only in a rabbi’s study and dinner in a restaurant right in Park Slope.”
Right then and there he says to me, “Okay then, will you marry me?”
“YES” I say, and then throw my arms around him. Then I add with a laugh, I thought you would never ask.” We both laugh just then and I cry again this time from happiness. We are getting married.
A few days later we meet with Rabbi Weiss at Congregation Beth Elohim in Park Slope, Brooklyn. It is a One hundred and fifty year old congregation that had members like Governor Lehman as part of their flock
As it turned out the only date available for the rabbi to marry us was Monday October 27, 1986 one day before my future in-laws would fly back to Florida for the winter.
Which brings me t the other event I mentioned.
The World Series: Our wedding date was set for the day after the seventh game of the World Series.
In the summer of 1986 Mark proudly wore his Mets cap everywhere from Fire Island to Park Slope. It seemed certain that the Mets would make it into the World Series. At least he hoped they would.
As a Yankees fan I was somewhat less interested in the Mets than Mark, he would often say, “I am a New York fan so whichever team gets into the World Series, I am rooting for them.”
Mark followed the Mets all season because for the first time since 1969 the Mets looked like a winning team. The playoff series was grueling and as the excitement started to build and the city was catching World Series fever, we both lost many hours of sleep cheering them on as they edged ever closer to being contenders.
The tension began to mount as the day of our impending wedding drew near. Mark wasn’t very interested in helping me plan our impending wedding his entire focus was on the World Series.
I realize I have competition.
Game six. October 25, 1986. Mark is at the game with his friend Neil who happens to be a neighbor of then Mets manager Davey Johnson in Longwood, Florida. Neil has come up for the series and he has great seats from Davey J.
Mark, my groom and Neil are sitting behind home plate with the Mets’ wives on one side the Red Sox wives on the other. I am home watching the game on television and making lists for last minute details for the wedding.
The Mets win in a stunning victory over the Boston Red Sox.
When Mark comes home he is delirious, “It was so exciting,
Mookie’s * wife was right there next to me. She couldn’t even watch, she just put her head down and prayed and then when he hit that line drive to the limping Bill Buchner, she started screaming and crying, right there next to ME.”
It was exciting! How could my little wedding plans compete with that? I was glad the whole thing would be decided the next night and we could concentrate on pulling our wedding together.
Sunday October 26, 1986. Game seven. Rain. More Rain. Drizzle. Mizzle. Fog. Mist. Downpours. No game was going to be played today and would be postponed until tomorrow. My groom was miserable.
“Well he says, I suppose I should be glad I got to see game six, “ he rationalizes. “ With the rain delay they could lose their momentum. What if they lost?” His tone was one of resignation and misery.
What was I going to do? We got into the car to go have brunch on the Lower East Side and as we drove along in the mist and fog he was wearing his Mets cap and an unhappy look on his face.
He continued, “ I’ll give my ticket away and be glad that I saw the best game of the series.” The air in the car was as thick and soupy as the air outside.
Gloom. Doom. Then, an idea, it seemed crazy as I worked it out in my head. I just spilled it out.
“Most people run out of their wedding to get on a plane for a honeymoon, don’t they?” I asked.
“Yes, and…” my grumpy groom says to me.
“We are not going on a honeymoon right now are we?” I could see he wasn’t following me.
“No, so what’s your point?” He’s a bit testy. I press on.
“ What if we run out of our wedding after the dinner to go to Shea Stadium and see the rest of the game?”
“ Nice try Nancy but I only have one ticket. That is not going to work.” He says to me, shaking his head.
“Wait a minute,” I say to him “ What about this? You know how they let people into Broadway plays without at ticket at intermission?” Now I think, hey this might work.
“Yeah so? This is baseball, not Broadway.” He sounds a bit annoyed at the whole idea.
“ True, not Broadway. What if we could get in after the fifth inning? What if it’s possible? We won’t know until we go do it will we?”
He turns and looks at me with some interest.
“ Hey come on. Let’s do this. The dinner after the wedding should be over around the fifth or sixth inning, we could say our goodbyes, drop people at trains and drive like crazy to Shea. What do you think?”
Mark liked the idea, but then, “What if they don’t let you in? What will you do?” I thought it over. I was used to traveling with a bag packed with comfortable clothes. We were accustomed to spur-of the-moment adventures.
“I’ll take that chance. If necessary I’ll change in the car, listen to the game and wait for you.”
For the first time since the rainout was officially called we both started to smile. We had hatched a plan. We could make it work.
Monday October 27, 1986. Nerves. Drizzle. Fog. Nerves. Fog. We have some running around to do including going to city hall to get our marriage license. We get into a quarrel over flowers, then champagne, cookies.
We pull it together. He picks up his mother and father, the nieces and nephews arrive, I pick up my mother at the train, put on my white evening suit and matching heels, we are ready.
It was time.
There we stood in the rabbi’s study a room larger than most synagogue sanctuaries. Smile, pictures, smiles cookies and champagne and we finally say, “I do.”
Mark stamps on the traditional wine glass and everyone shouts, “Mazeltov”.
I let out a sigh of relief, “I wasn’t so sure we were going to make it.”
Mark smiles at me.
We load into cars and drive the few blocks to “Raintrees” on Prospect Park. It’s a Monday and not very busy. The table is set for our small party, right next to the French windows that wrap around the restaurant for a view of the park.
Dinner. The service was smooth and unhurried. Then, suddenly out of nowhere an out of control car narrowly misses us as it zooms up onto the sidewalk and everyone in the family scatters. We check in with everyone, “Phew, You okay?” then we all sit back down and count our blessings.
The score was 3-0 Bosox. Mark and I agreed that if the Sox were ahead by a big lead we wouldn’t bother with the game.
By this time I was so excited by our plan, I said a silent prayer, “Let’s go Mets! Lets go Mets!”
Dessert. Coffee. I check in with the bartender who has a tiny television behind the bar: top of the sixth, still 3-zip. Then suddenly there is a change. The first baseman, Keith Hernandez hits a two run single in the sixth inning, the Mets are on the scoreboard and we are going to the game.
Check paid. Kisses. Hugs. Everyone piles into cars. We take my mom to the train at Penn Station which eats up a lot of our time going into the city,but neither of us wants to drop her at the Atlantic Avenue station. We give her a kiss and hug and zoom away heading for the Midtown Tunnel to the Long Island Expressway, “oh please don’t let there be traffic,” I am thinking out loud. We sail on through so far, everything is working like clockwork.
Disaster strikes. We get lost! How could this be? We’ve been past Shea a million times the stress of getting there causes us to get confused at a critical moment.
“Where the hell are you going I holler at Mark?” Not exactly helpful words, but I am anxious now we are so close.
Bottom of the seventh, things are heating up on the radio and the Mets shoot into the lead. We’re arguing now.
“What are you doing, hurry up, turn around, go the other way!” I am just spouting out directions, so attached am I to getting there now.
Finally into the parking lot. There are no spots. We park at the exit ramp near the Grand Central Parkway just as Ray Knight hits a home run off BoSox reliever Schiraldi.
We jump out of the car, me in my off white wool crepe suit and ivory high heel pumps, Mark in his suit adorned with a floral spring.
Cops stop us. “You can’t park there.”
We are desperate to get there.
“We just got married.” Mark is waving his single ticket in the air.
Luckily, the cops smile and wave us on.
“All right, your car will be okay there.”
We start to run as the roar of the crowd pulls us forward, the mud from the rains that came the day before splattering onto my suit, my shoes. I didn’t care. We could still make it.
Mark becomes annoyed because I didn’t change into my running shoes, “Why the hell didn’t you put on your sneakers, “ he hisses at me. “You’re slowing us down.”
How could I explain that I didn’t like the way sneakers looked with my winter white wool crepe suit? I knew we would have a better chance of both getting into Shea if I at least looked like a bride.
The crowd is screaming, we could feel the electricity blowing out of the top of Shea Stadium.
There is a thunderous roar as we get to the gate.
Just then Darryl Strawberry hits a home run and we show our single ticket.
“Where are you two going?” the guard at the gate wants to know.
Mark waves his single ticket and show him my suit, the flowers, my now muddy bridal shoes.
Mark says, “We just got married.”
With that, hey don’t just let us in; they escort us in.
It’s working, it’s working we are inside and being shown to our seats.
Bottom of the eighth, we arrive to see Keith Hernandez in his last at bat. The seats we have are the best in the house, right behind home plate where celebrities, friends and family sit. We are so close we can almost touch the catcher, Gary Carter.
The sides retire. the Mets closer Jessie Oroszco is on the mound to finish off the Red Sox.
“Where have you two been? Mark has the best seats ever our box is right directly behind home plate and we are sitting with the Mets wives and Billy Joel and (then wife), Christie Brinkley.
“Pinch me, “ I whisper to Mark who answers for us,
“We just got married and ran here as fast as we could.”
And then on October 27, 1986 ou wedding day, The New York Mets become World Champions for only the second time in baseball history.
Going the “wrong” way might just be what you need.
One grey Yom Kippur morning in September 2007, I awoke early to walk with Mark to our synagogue in Rockville Centre and then I would go on my way to visit a neighbors’ mother who had recently suffered a series of strokes and was in a nursing home right nearby.
Mark and I came from two distinct Jewish backgrounds, his was traditional he had gone to Hebrew School and became a Bar Mitzvah his parents kept kosher. He knew how things worked.
My family was the opposite no formal Jewish education. However,
Mark once said to me about Yom Kippur. “Even the most un-Jewish Jew knows about this day.” True that.
In the simplest of terms Yom Kippur is a high holy and most solemn day of atonement. It is connected to the Days of Awe known as Rosh Hashanah or the Jewish New Year. During this time of reflection Jews pray to God, looking inward to see what things might need to change On Yom Kippur, even the simplest of acts including eating and drinking , looking in the mirror are not done. We fast. We pray. We ask for forgiveness for our sins and to be given another chance to begin anew to be inscribed in the book of life. At the end of this most solemn day we eat, we share a blessed meal with family and loved ones. Everyone is so glad we made it and gratefully we eat with gusto.
On this particular Yom Kippur morning, I walked Mark the 1.7 miles to Temple B’nai Sholom in Rockville Centre and then left him at the front door. I would be back later to be with him. Right then I was a woman on a mission to visit a person who, not very long after my visit, passed on. The nursing care center was just a block or two away. “You are a wandering Jew, on Yom Kippur. You should be in the “shul” atoning for your sins.” Instead I chose first to go see a person who needed a visit and I hoped I would be forgiven for not going into the synagogue right then.
I turned in what I thought was the right direction to go on my short journey to see Margaret. Somehow I turned wrong and instead of the nursing home, I found myself in front of St. Mark’s Church on Hempstead Avenue in Rockville Centre. On the lawn facing me was a large rectangular purple and golden carved wooden sign that read, “Divine Yoga”, with a phone number.
I had been a yoga practitioner for at least 25 years by then and was looking for a new place to practice.
It was Mark who first suggested that I go find my yoga when we lived Park Slope, Brooklyn in the 1980’s. Back then there wasn’t a yoga studio on every street corner. I had to search around to find a class.
I found yoga to be a bit annoying at first, the strange breathing, weird sounds, the chanting Sanskrit, and worse, looking at someone’s bottom in gray sweatpants almost sent me running for the exits. This was pre-Lululemon yoga wear.
Instead I kept looking for my yoga and eventually found Yoga Zone on the east side of Manhattan across town from my office on 54th street. It was an a oasis of calm a respite from my hectic job.
Living on the south shore of Long Island has it benefits, close to beautiful beaches and 35 minutes into Manhattan on the Long Island Railroad. One big drawback was that in 1989 when we moved to Rockville Centre from Brooklyn, yoga studios on the south shore were non-existent. I either practiced in the city or had to travel to Glen Head on the north shore where there was another Yoga Zone studio.
When Yoga Zone closed in Glen Head closed I was bereft. I tried Bikram yoga a kind of yoga known as hot yoga, that has 26 sequential poses done in a 102 degree room. A Bikram yoga studio opened in town and, at first I was glad it was there even though it wasn’t quite what I was looking for, but, It wasn’t for me, I got bored with the same 26 poses over and over. The sweat and steam made my hair frizz and it caused a skin issue that was dreadful and that I won’t go into detail about here.
So there I stood on that gray Yom Kippur morning in 2007. How odd I thought, “I have never noticed this sign before and I know I have been past St. Mark’s church many times. “
Mark would say to me that things come into view that were always there but went unnoticed or “the teacher can teach when the student is ready to learn.” It was my moment to find Divine Yoga.
As I stood there facing St. Mark’s church a soft but soon steady rain started to fall. Although I love walking in the rain, I did not have an umbrella and my first thought was, “Ooooh- nooo my hair is going to frizz.“ The curly-haired girls lament.
I spotted a door facing me on the north side of the church, not the main sanctuary door in the front, but another entrance visible from my vantage point… I sprinted toward the door hoping it would be open, I was eager to get out of the rain. It was Yom Kippur and if my hair got ruined I was going to have to live with it until after sundown.
When I pushed the large, heavy wood door, it opened and I was standing in a small vestibule: stairs facing me going up and stairs to my right going down with a mahogany banister
To my left there was a bulletin board decorated in the same colors as the sign on the lawn of the church. Emblazoned with purple and gold letters, the bulletin board was artfully designed with a golden container fastened to the board with the Divine Yoga schedules. I took one down. There was a full schedule of classes including one I had heard of but never tried before: Kundalini Yoga as taught by Yogi Bhajan.
‘Kundalini yoga?’ Something I wanted to try though I knew not what it was and I was on the lookout looking for a shift in my yoga practice, I wanted something more, was it possible that Kundalini yoga was it?
At the time I did not know it but when I opened that door I found something deep that I sought but had not found.
My walk in the rain led me to a community of friends that would be more important to me than I could have possibly ever imagined at the time. Mark had always encouraged, no pushed me to have more of my own friends not just “our friends” but ones that are mine.
I did not know on that rainy Yom Kippur day in September 2007 when I found Divine Yoga that Mark’s life and mine was soon going to be turned upside down.
I found friends who would be there for me and for Mark in an as yet unknown future crisis.
All because I took a “wrong” turn.
My husband, Mark was a private man. Mark never sought the spotlight.
As a NYC public schools principal and educator for 33 years in Ocean Hill –Brownsville, East New York and the South Bronx, Mark preferred to give credit for his schools’ success to his teachers, staff and students. As a Central Park and Roxy dance skater Mark’s friends were many though just a very few knew his “story.” But he knew theirs.
He was the kind of curious guy who when you were done talking you knew very little about him, yet he knew many things about you. He would ask “What high school did you go to? What did your parents do? What’s a good restaurant in that neighborhood?” You would walk away thinking, “Hmmm. What a great conversation we had. “ Of course it was because you got the chance to talk all about yourself to someone who was interested in the answers.
In March of 2008, Mark thought he had a skating-related pull in his side. He was sent by our family physician for a scan that revealed some kind of mass and was immediately directed to our local hospital for testing. After a week of tests he was diagnosed with sarcoma and we were sent to Memorial Sloan-Kettering Cancer Center in New York City.
When we met with his oncologist, Mark was told the only proven and effective treatment for his kind of cancer is to remove it surgically and that it would return. As it happens there are the slow moving versions of sarcoma and the aggressive fast-moving types. We were praying for the former.
When the results came back after surgery it was revealed to us that Mark’s cancer was “de-differentiated retroperitonael liposarcoma”. Rare. Aggressive. Shitty. Bad luck.
Mark was told that there were a few clinical trials just starting and that by the time he needs it there may be a drug that might slow down the progress of his particular cancer. The odds were against us though.
After his first surgery Mark enjoyed one year of being cancer-free. When a scan came back in the spring of 2009 showing the return of his tumors he underwent a second surgery. Unfortunately the growth rate of the tumors had begun to pick up speed and were back within 9 months, too soon for another surgery.
In the spring of 2010 Mark began a two-year course of chemotherapy that by some miracle kept him stable for an unheard of 24 months, yet often he was quite exhausted.
Still we continued skating in Central Park and along the pathways of Hudson River Park. We resolved to enjoy life no matter what was going on. Marks’ monthly scans held us in suspense. For a brief while he is told that the tumors are stable and we breathe a sign of relief but we knew eventually the news will not be good.
In December of 2010 we were home listening to jazz on WBGO radio and just enjoying being together, when I turned to him and said this, “ Mark, I read about this new fundraising event called Cycle for Survival and I started a team that you and I are going to lead to raise money for rare cancer research at MSKCC. “
That shook Mark to the core. He flew off the couch and said in a very loud voice, “No, no, no everyone will know now that I have cancer.” He railed at me.
“Honey… Mark”, I said with tears welling up, “ What if maybe people already know? Maybe they noticed that you went from having a full head of hair like Richard Gere to complete baldness like Bryan Cranston in Breaking Bad. Maybe they know something is up.”
“Not funny, “ he said to me. I am not doing this.” He wasn’t buying it right then. I was shaking with upset but was not deterred. I knew he would come around and be okay with what I was up to for both of us. I had to do something.
Up until reading Jennifer Goodman Linn’s story in a magazine about being fearless and the genesis of Cycle for Survival, I felt powerless that there was nothing I could do to help. The outcome was a foregone conclusion, but being a part of Cycle for Survival gave me a purpose to fight like hell. I felt that I was part of something larger than our situation.
So for those closest to Mark it was a bit of a surprise when, in one week in February of 2012 he agreed to be on Eyewitness News and then Fox and Friends to be interviewed about his rare-near-impossible to treat cancer and Cycle for Survival, a national indoor spin event to raise awareness and money for rare cancer research at Memorial Sloan-Kettering Cancer Center in New York.
Mark had been asked to do some TV spots by the CFS PR team and he said “yes” and was then photographed, interviewed and rode a cycle on national television to publicize the cause.
You might say that our leading two teams in NY and Long Island, comprised of family and friends was transformative for both of us.
“I was not all that thrilled with the idea of sharing my story and going public with what was going on in my life. I have always kept a low profile. It was my wife Nancy who started our indoor cycling team. I am glad that she did it. “ Mark said in one of his interviews. Over the past four years our team originally named Expect Miracles for Mark has raised over $70,000 for rare cancer research.
Mark once said this, “ Being part of something bigger than myself, helping to raise millions and cycling alongside, nurses, doctors, patients helps me as well.” Mark proudly wore his Cycle for Survival hooded sweatshirt to spread the word and as a reminder of the “love, tears and smiles of that inspiring afternoon.”
“No one wants to be in the cancer club, but when your moment comes you have to step up to the plate and keep swinging. When you have a rare cancer with little or no treatments available, you hope, you pray something, anything to give you just a little more time. You just want to hang in there long enough for the miracle,” said Mark.
On September 18, 2012 my brave husband Mark, lost his battle with cancer. A few days before he passed away he reminded me to continue with Cycle for Survival so that no one has to suffer like he did. He was wearing his special Cycle for Survival team hooded sweatshirt when he died at home surrounded by loving family and dear friends.
His wish: that a child with leukemia, a sister with a brain tumor or a mother with pancreatic cancer or a person with any cancer can be told, “We got this. We have a cure and we know that it will work.”
Now that would be a miracle for sure.
And so we continue to be a part of Cycle for Survival with our team renamed Mark’s Magicians and we are always looking for people to help us win this battle. Come and join us.